#newsmalatirari
Introduction and Chairs
Silvio Brusaferro, Istituto Superiore di Sanità
Luigi Bertinato, Istituto Superiore di Sanità
Annalisa Scopinaro, UNIAMO Federazione Italiana Malattie Rare
Domenica Taruscio, National Centre for Rare Diseases, Istituto Superiore di Sanità
Rare disease patients in Bulgaria during the COVID-19 pandemic
Rumen Stefanov, Professor, Medical University of Plovdiv, Bulgaria
Technologies to support fragilty, disability and rare diseases: results of an electronic survey during the Covid-19 epidemic emergency in Italy
Daniele Giansanti, Eng. National Center for Innovative Technologies in Public Health, Istituto Superiore di Sanità
Connected Care: citizens and patients at the centre of digital experience
Deborah De Cesare, Researcher, Digital Innovation in Healthcare Observatory – Politecnico di Milano
Discussion and conclusions
Domenica Taruscio, Director, National Centre for Rare Diseases, Istituto Superiore di Sanità, Rome, Italy
Link to participate to the event: https://live.starleaf.com/OTUwMTMyNzI6MjY1MDE1
If you wish to ask a question to speakers send a e-mail to: qacovid.rare@iss.it