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SUMMARY:Conference For an EU commitment to tackle rare diseases
DESCRIPTION:The EESC is organising a major conference entitled “For an EU commitment to tackling rare diseases” on 29 November 2024 from 9:00 am to 4:00 pm in Budapest Congress Centre. \nWith this event\, the EESC will demonstrate once again the commitment of civil society organisations to support the establishment of a European policy framework for rare diseases\, bringing together all the stakeholders needed for a concerted strategy in the areas of research\, prevention\, digital\, healthcare\, social protection and investment in rare diseases\, both at European and national levels. \nThis conference will present the EESC’s exploratory opinion drawn up at the request of the Hungarian Presidency of the Council of the EU on Leaving No One Behind: European Commitment to Tackling Rare Diseases\, which was adopted at the October EESC Plenary Session (Rapporteur: Ágnes CSER\, Civil Society Organisations – GR III\, Hungary). \nThis event\,  will take place at the Budapest Congress Centre\, in Alkotás street 63-67\, in Budapest\, Hungary. The event will also be webstreamed in English and Hungarian. \nUNIAMO parteciperà alla seconda sessione con una relazione. \n 
URL:https://uniamo.org/evento/conference-for-an-eu-commitment-to-tackle-rare-diseases/
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