Si terrà giovedì 22 aprile alle 15,  il nuovo appuntamento con i meeting scientifici “COVID-19 e Malattie rare”, promossi dal Centro Nazionale Malattie Rare dell’Istituto Superiore di Sanità UNIAMO. 
Durante l’incontro condivideremo esperienze e buone pratiche su Covid-19 e malattie rare con un focus sul Cile.
L’evento sarà trasmesso in diretta Facebook sulla pagina di UNIAMO Federazione Italiana Malattie Rare e a questo link
Durante il meeting è possibile inviare le domande ai relatori a questo indirizzo mail: qacovid.rare@iss.it.

PROGRAMMA

Introduction and Chairs

Silvio Brusaferro, President of the Istituto Superiore di Sanità (ISS)

Luigi Bertinato, Head of the Scientific Secretariat to the President ISS

Annalisa Scopinaro, President of UNIAMO Federazione Italiana Malattie Rare

Domenica Taruscio, Director of the National Centre for Rare Diseases, ISS

Chronic and rare lung diseases during the pandemic of COVID-19

Beatriz Lara, MD, Respiratory Medicine Department, University Hospital Coventry and Warwickshire NHS Trust, Coventry, Warwickshire, UK

COVID-19 and rare diseases: the experiences of patients in Spain

Alba Ancochea Díaz, Elvira Martínez Jiménez, Federación Española de Enfermedades Raras – Fundación FEDER para la investigación.

COVID-19 and rare diseases: a global perspectives of diagnosis, research and care during emergency. The clinical research global program in rare diseases fellowship experience

Barbara Hugonin, MD, Maternal Child Department, USL Toscana Centro, researcher and geneticist Rare Diseases Institute, Children Nationwide Hospital, Washington, fellow Leadership in Pediatric Program

Discussion and conclusions

Domenica Taruscio, Director of the National Centre for Rare Diseases, ISS

Link to participate to the event: https://meet.starleaf.com/4896746467/app

If you wish to ask a question to speakers send a e-mail to: qacovid.rare@iss.it

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