Introduction and Chairs
Silvio Brusaferro, President of the Istituto Superiore di Sanità (ISS)
Luigi Bertinato, Head of the Scientific Secretariat to the President ISS
Annalisa Scopinaro, President of UNIAMO Federazione Italiana Malattie Rare
Domenica Taruscio, Director of the National Centre for Rare Diseases, ISS

Harmonizing approaches to Newborn Screening in EU: key principles. EURORDIS position paper.
Simona Bellagambi, Member of EURORDIS Board of Directors and UNIAMO Representative in EURORDIS

Rare Diseases in Argentina. Facts and possibilities for becoming part of the international cooperation
Emilio J.A. Roldan, Scientific Director Qualix DoT, General coordinator CERyDH, ICORD Board Member

COVID-19 and rare diseases: the experiences of patients in Argentina
Ingrid Anneris Heidenreich, President, International Reference of Cantu Syndrome (FuSCA). Coordinator, Group of Patients with Cantu Syndrome from Latin America. Member of FADEPOF
(Argentine Federation of Uncommon Disease)

Discussion and conclusions
Domenica Taruscio, Director of the National Centre for Rare Diseases, ISS
Link to participate to the event: https://live.starleaf.com/OTUwMTMyNzI6MTQxMzI3