Si terrà giovedì 20 maggio alle 15,  il nuovo appuntamento con i meeting scientifici “COVID-19 e Malattie rare”, promossi dal Centro Nazionale Malattie Rare dell’Istituto Superiore di Sanità UNIAMO. 
Durante l’incontro condivideremo esperienze e buone pratiche su Covid-19 e malattie rare con un focus sulle politiche europee, sulla Svezia e la Georgia.
L’evento sarà trasmesso in diretta. Per partecipare: https://meet.starleaf.com/4896746467/app
Durante il meeting è possibile inviare le domande ai relatori a questo indirizzo mail: qacovid.rare@iss.it.
PROGRAMMA

Introduction and Chairs
Silvio Brusaferro, President of the Istituto Superiore di Sanità (ISS)
Luigi Bertinato, Head of the Scientific Secretariat to the President ISS
Annalisa Scopinaro, President of UNIAMO Federazione Italiana Malattie Rare
Domenica Taruscio, Director of the National Centre for Rare Diseases, ISS

Putting rare diseases on the European map: thirteen years (2008 2021) of policies, priorities and perseverance. A foresight for coming years
Antoni Montserrat Moliner, Active Senior on Public Health for the European Commission, Vice President of the Luxembourg National Committee for Rare Diseases, Member of the Board of ALAN-Maladies Rares Luxembourg, Member of the Scientific Committee of FEDER, Spain Undiagnosed patients and COVID-19 pandemics
Helene Cederroth, President of Wilhelm Foundation, Sweden; Board Member of UDNI (Undiagnosed Diseases Network International) COVID-19 and rare diseases in Georgia
Lana Bokuchava, Director on Public Affairs, Georgian Foundation for Genetic and Rare Diseases (GeRaD); Project Senior Manager, Center on Rare Diseases Research, School of Medicine, New Vision University, Tbilisi, Georgia
Oleg Kvlividze, CEO, Georgian Foundation for Genetic and Rare Diseases (GeRaD), Tbilisi, Georgia

Discussion and conclusions
Domenica Taruscio, Director of the National Centre for Rare Diseases, ISS

Condividi